IG Living Advocate Podcast

Every quarter, IG Living will hold a podcast on a topic that affects those with autoimmune and immunodeficiency disorders. Industry experts will share the latest immune globulin (IG) news and information and answer questions from our community.

Podcasts will cover topics such as the increased demand for IG products, Medicare, IG side effects, and reimbursement. more info

Listen to the episode
Planning for Retirement with Chronic Illness.

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Let's Talk: Cameron and Max Mona

Like many families living with an immune deficiency disease, the Mona family found abundant support through the Immune Deficiency Foundation (IDF). That's why when siblings Cameron and Max decided they wanted to raise money for their favorite nonprofit and also boost awareness about Cameron's common variable immune deficiency (CVID) diagnosis, they decided to basically "go big or go home."An avid mountain climber, Max floated the idea of trekking Mount Kilimanjaro (the highest mountain in Africa and the highest single freestanding mountain in the world), and right away the brothers knew they had found their fundraiser. In July 2019, after rigorous preparation and training, Max successfully reached both his fundraising goal and the summit, successfully paying tribute to the little brother he considers his "hero."… full article (pdf)

Product Guide: Personalizing the Infusion Experience

Product Guide

Diffuse the Situation

According to the National Institutes of Health, nearly 24 million individuals suffer from an autoimmune disease, many of which interfere with sleep. For example, autoimmune disorders such as lupus, multiple sclerosis, Guillain-Barré syndrome and Graves' disease cause hormonal and nerve imbalances that disrupt sleep. In addition, immune globulin treatments for primary immunodeficiency disorders can lead to hot flashes, chills, anxiety and other issues that are not exactly the ideal recipe for rest and relaxation. Yet, while medications can help promote sleep, a growing number of Americans are opting for more natural alternatives such as aromatherapy.… full article (pdf)

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Ask the Experts

Reader: Can a patient remove untrue and negative comments by a doctor from his or her medical record?

Abbie: The Health Insurance Portability and Accountability Act (HIPPA) Privacy Rule establishes minimum federal standards for protecting the privacy of individually identifiable health information. In addition, the rule gives individuals certain rights pertaining to their medical records, including rights to access and amend their health information and to obtain a record of when and why their personal health information has been shared with others for certain purposes. This means health insurers and providers who are covered entities must comply with your right to review your records. Further, you may request a copy of those records and ask to have corrections added to your health information.… full article (pdf)

Meet the Staff

Cheryl Brooks
Assistant Editor

Abbie Cornett
Patient Advocate

Advisory Board

Bob Geng, MD, MA
Assistant Professor, Division of Allergy & Immunology
University of California, San Diego

Terry O. Harville,
MD, PhD

Medical Director Special Immunology Laboratory University of Arkansas for Medical Sciences

Todd Levine, MD
Director, Department of Neurophysiology Good Samaritan Hospital, Phoenix
Assistant Professor of Clinical Neurology University of Arizona

Fred Modell
Co-founder of the Jeffrey Modell Foundation

Marc Riedl, MD, MS
Associate Professor of Medicine Division of Rheumatology, Allergy & Immunology University of California, San Diego