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IG Living Advocate Podcast
Every quarter IG Living will hold a podcast on a topic that affects those with autoimmune and immunodeficiency disorders. Industry experts will share the latest immune globulin (IG) news and information and answer questions from our community.
Podcasts will cover topics like the increased demand for IG products, Medicare, IG side effects, and reimbursement. more info
Listen to the episode The Increased Demand for Immune Globulin Products and Its Effects on Patient Access.
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Columns
Let's Talk: Luba Sobolevsky
Since the Immunoglobulin National Society's (IgNS) inception nearly a decade ago, the organization has focused on improving the care of patients receiving immune globulin (IG) therapy. IgNS has accomplished many things, including creating the first-ever Ig Standards of Practice to guide and standardize IG clinical practice; establishing an IG certification for nurses and pharmacists that ensures expertise and protects patients; providing thousands of hours of education to keep up with the changes in this complex field; and hosting the IgNS National Conference for clinicians and the IgNS Patient 360 Conference that convenes more than 1,000 clinicians, industry members, patients and advocacy groups who work together to improve practice and patient care. We wanted to learn more about this trailblazing organization from its Founding Executive Director Luba Sobolevsky… full article (pdf)
Product Guide
Live the Independent Life
Getting Dressed. A trip to the market. Making dinner. For most, these are simple tasks that don't require much thought or energy. But for individuals living with chronic illnesses such as primary immunodeficiency diseases, autoimmune disorders or chronic pain, completing these tasks every day can often be a challenge. That's where assistive devices or technology come into play. Thanks to these tools and technologies — which run the gamut from something as simple as a pill organizer or grocery delivery to a sophisticated voice-activated computer system or robotic caregiver — individuals can remain self-sufficient… full article (pdf)
Ask the Experts
Reader: Can intravenous immune globulin therapy be started if a person has a current infection?
Abbie: I am starting intravenous immune globulin (IVIG) therapy and am a lymphoma cancer survivor from 2012. For the last two-and-a-half years, I have had constant infections such as strep throat and sinus infections, but worst of all are the bacterial urinary tract infections (UTIs) caused by extended-spectrum beta-lactamases bacterial enzymes. I have never had a UTI before this, and now I suffer with symptoms of them every day. I am hoping IVIG therapy will give me back some quality of life. I believe I currently have a UTI, so I am wondering if IVIG therapy can be started… full article (pdf)
Meet the Staff
Advisory Board
Bob Geng, MD, MA
Assistant Professor, Division of Allergy & Immunology
University of California, San Diego
Terry O. Harville,
MD, PhD
Medical Director Special Immunology Laboratory University of Arkansas for Medical Sciences
Todd Levine, MD
Director, Department of Neurophysiology Good Samaritan Hospital, Phoenix
Assistant Professor of Clinical Neurology University of Arizona
Fred Modell
Co-founder of the Jeffrey Modell Foundation
Marc Riedl, MD, MS
Associate Professor of Medicine Division of Rheumatology, Allergy & Immunology University of California, San Diego
Patient Advocate
Ask the Experts – Get answers from experts about issues related to immune-mediated diseases?
Advocacy Groups – Living with a chronic illness? Reach out, seek help and find a community.
Take Action – Everyone can advocate for healthcare treatment and reimbursement issues.
Share Your Story – Help others by sharing your experience with chronic illness!
