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Let's Talk! – Evan Metzger

Evan Metzger's life has been marked by compounding medical challenges that would derail most people before adulthood. Born with a compromised immune system, the 24-year-old's condition escalated, closing doors he had long prepared to walk through – including a future in military service. Just as he found stability, a devastating post-viral illness triggered widespread neurological and autonomic dysfunction, leaving him searching for answers that still haven't come. Through it all, Evan has refused to let illness define him. His story is not just about survival – but about grit… full article (pdf)

Digital Patient

Your Digital Health Dashboard: Building a Personal System to Track Symptoms, Treatments and Trends

I've always been a bit of a worrier regarding my health. I remember back in grade school when I asked to move desks when someone beside me was sneezing, and when I avoided sharing drinks or the same water bottles in sports. What's ironic, looking back at these situations now, is that maybe there was an inner part of me looking out for my immune system, which was compromised, even though I didn't know it yet. Maybe it was foreshadowing things to come?… full article (pdf)

Ask the Experts

Reader: What Advice Do You Have About Beginning IG Treatment?

Abbie: What you are feeling is completely understandable. Starting treatment can be scary, especially when you already know your daughter tends to be sensitive to medications and medical treatments. One of the most important things you can do is let the doctor, pharmacist and infusion nurse know your concerns before treatment starts. It is OK to ask questions and advocate for a slower, more cautious approach if that would make you… full article (pdf)