IG Living Advocate Podcast
Every quarter, IG Living will hold a podcast on a topic that affects those with autoimmune and immunodeficiency disorders. Industry experts will share the latest immune globulin (IG) news and information and answer questions from our community.
Podcasts will cover topics such as the increased demand for IG products, Medicare, IG side effects, and reimbursement. more info
Listen to the episode PI and Allergies.
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Let's Talk: Ashlee BeGell
Diagnosed with common variable immune deficiency (CVID) at the age of 4, Ashlee BeGell has relentlessly pushed past the limitations she faced growing up with chronic illness. As a young adult, Ashlee recently achieved her dream of becoming a registered pharmacist and is passionate about helping others learn to dream big and advocate for themselves… full article (pdf)
On the Road Again - With Food Allergies
Peanuts hidden in a steaming bowl of Thai noodles. A deli sandwich piled high with turkey, avocado and cheese. One prawn discovered in a cup of hot-and-sour soup. These harmlesslooking dishes could lead to a severe, life-threatening allergic reaction for at least 32 million Americans. For people living with food allergies, traveling isn't easy because allergens are everywhere. Yet, while traveling with food allergies is challenging, there are ways to mitigate the risks and make travel both possible and pleasurable… full article (pdf)
Ask the Experts
Reader: What is CVID, and How Do I Explain It To Others?
Abbie: CVID is one of more than 200 different forms of primary immune deficiency diseases affecting approximately 500,000 people in the United States. Specifically, it is a genetic disorder that affects the immune systems of approximately one out of every 25,000 people. People with this condition do not make enough antibodies (proteins that fight infections) in their blood, so they experience frequent infections. Symptoms of CVID vary widely from person to person, and they can range from mild to severe. Signs and symptoms of CVID include breathing problems, chronic cough, diarrhea that causes weight loss, ear infections, frequent sinus infections and… full article (pdf)
Meet the Staff
Ronale Tucker Rhodes, MS
Bob Geng, MD, MA
Assistant Professor, Division of Allergy & Immunology
University of California, San Diego
Terry O. Harville,
Medical Director Special Immunology Laboratory University of Arkansas for Medical Sciences
Todd Levine, MD
Director, Department of Neurophysiology Good Samaritan Hospital, Phoenix
Assistant Professor of Clinical Neurology University of Arizona
Co-founder of the Jeffrey Modell Foundation
Marc Riedl, MD, MS
Associate Professor of Medicine Division of Rheumatology, Allergy & Immunology University of California, San Diego
Ask the Experts – Get answers from experts about issues related to immune-mediated diseases?
Advocacy Groups – Living with a chronic illness? Reach out, seek help and find a community.
Take Action – Everyone can advocate for healthcare treatment and reimbursement issues.
Share Your Story – Help others by sharing your experience with chronic illness!
Chronic Granulomatous Disease (CGD)
Chronic Inflammatory Demyelinating
Common Variable Immunodeficiency (CVID)
Idiopathic Thrombocytopenic Purpura (ITP)
Multifocal Motor Neuropathy (MMN)
Primary Immune Deficiency Disease (PIDD)
Severe Combined Immunodeficiency