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IG Living Advocate Podcast
Every quarter, IG Living will hold a podcast on a topic that affects those with autoimmune and immunodeficiency disorders. Industry experts will share the latest immune globulin (IG) news and information and answer questions from our community.
Podcasts will cover topics such as the increased demand for IG products, Medicare, IG side effects, and reimbursement. more info
Listen to the episode
The Road to Diagnosis.
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Columns
Let's Talk: Daniela Delgado
When she was just 4 years old, Daniela Delgado made a wish: She recalls being in the kitchen with her parents and waving a green spatula in the air, saying "This scraper is my magic wand, and I want to make cakes for sick kids!" That "wish" became a hobby, and the hobby became a full-fledged nonprofit named Daniela's Little Wish. Today, this 15-year-old Sandy Hook, Conn., resident — who herself lives with two chronic disorders — lovingly creates custom birthday cakes and other specialty treats free of charge to children living with severe illnesses. Her tagline: "Baking Smiles for Kids Since 2011."… full article (pdf)
Product Guide
Assistance Program for PI - Help is on the Way
A new diagnosis is daunting for patients first learning they have a chronic disorder. From reviewing treatment options and infusion settings to understanding symptoms and side effects, navigating diseases like primary immunodeficiency (PI) that require immune globulin (IG) therapy can be scary and stressful for patients and their family members. Not only does researching the disease and its treatment options seem all-consuming, but sorting through health insurance and prescription drug coverage can be even more challenging. PI patients need help understanding their disease, paying for treatment and connecting with people suffering from the same condition, but they also need to know where to find it… full article (pdf)
Ask the Experts
Reader: Is Financial Assistance Available for PI Patients Moving Into Assisted Living?
Abbie: Unfortunately, this issue is a growing problem in the United States because of the increasing number of chronically ill older adults and the complex nature of their care, as well as the increasing cost of care. However, there are several measures you can take. First, sit down with a staff member at the care facility to determine the requirements for a single room. Then, ask your family member's physician to provide medical documentation of her condition. If they still will not provide her with a single room, you may need to… full article (pdf)
Meet the Staff
Advisory Board
Bob Geng, MD, MA
Assistant Professor, Division of Allergy & Immunology
University of California, San Diego
Terry O. Harville,
MD, PhD
Medical Director Special Immunology Laboratory University of Arkansas for Medical Sciences
Todd Levine, MD
Director, Department of Neurophysiology Good Samaritan Hospital, Phoenix
Assistant Professor of Clinical Neurology University of Arizona
Fred Modell
Co-founder of the Jeffrey Modell Foundation
Marc Riedl, MD, MS
Associate Professor of Medicine Division of Rheumatology, Allergy & Immunology University of California, San Diego
Patient Advocate
Ask the Experts – Get answers from experts about issues related to immune-mediated diseases?
Advocacy Groups – Living with a chronic illness? Reach out, seek help and find a community.
Take Action – Everyone can advocate for healthcare treatment and reimbursement issues.
Share Your Story – Help others by sharing your experience with chronic illness!
