Resources – Disorders Treated with IG
Primary Immune Deficiency Disease (PIDD)

PIDD occur in persons born with an immune system that is either absent or hampered in its ability to function. There are more than 150 PIDDs — some are relatively common, others are quite rare — which result in patients commonly having an increased susceptibility to infection.
Websites
- American Academy of Allergy, Asthma & Immunology has a helpful Q&A section on its website, with resources and tips for those with various immune deficiencies.
- Baxter's website offers in-depth information on immunology, PIDD and choosing a therapy.
- Immune Deficiency Foundation (IDF)
is dedicated to improving the diagnosis and treatment of PIDD through research and education. - International Patient Organization for Primary Immunodeficiencies (IPOPI) promotes the worldwide improvement in the care and treatment of PIDD patients.
- Jeffrey Modell Foundation is dedicated to early and precise diagnosis, meaningful treatments and, ultimately, cures for PIDD.
- National Institute of Child Health and Human Development (NICHD) is part of the National Institutes of Health. Go to the "Health Information and Media" tab on the website and do a search under "primary immunodeficiency."
- Treating PI.com is a resource created by CSL Behring for PIDD patients.
Support Groups
- Rhode Island peer group
- Connect with the Jeffrey Modell Foundation Facebook Page .
- Chat with peers on IDF's Forum.
- A chat group for all ages - Yahoo PID Support Group
- Chat with parents of children affected by primary immune deficiency.
- A group of family and friends of patients with primary immune deficiencies maintains a nonprofit network in the New England area.
Online Pamphlets and Education
- The “Immunodeficiency in Pediatrics” program or the PREP® Audio series is a new pediatrician education program that can be obtained by contacting the American Academy of Pediatrics at 866-843-2271 or visiting www.prepaudio.org.
- Go to the National Institute of Allergy and Infectious Diseases site and search for "primary immune deficiency."
- "Understanding the Immune System: How It Works," by the U.S. Department of Health and Human Services.
- "NIAID Initiative Addresses Primary Immune Deficiency Diseases by National Institute of Allergy and Infectious Diseases"