Resources – Disorders Treated with IG

Myositis
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Myositis

Myositis is the popular term used to describe a number of inflammatory myopathies, including dermatomyositis (DM), inclusion-body myositis (IBM), juvenile forms of myositis (JM) and polymyositis (PM), which cause swelling and loss of muscle.

Websites

  • The mission of The Myositis Association, is to find a cure for inflammatory and other related myopathies, while serving those affected by these diseases.
  • The Cure JM Foundation was created specifically to find a cure for Juvenile Myositis (JM), while also providing support and information for families affected by JM./
  • Johns Hopkins Myositis Center is a new patient treatment center that brings the expertise of rheumatologists and neurologists into a single clinic for patients with inflammatory (autoimmune) and toxic (drug induced) muscle conditions.
  • Myositis Support and Understanding is a volunteer-managed, patient-centered, 501(c)(3) nonprofit dedicated to improving the lives of myositis patients, specifically those with idiopathic inflammatory myopathies, including dermatomyositis, inclusion body myositis, polymyositis, and necrotizing autoimmune myopathy.

Online Support Groups