Will patients with chronic illness use online services to track their health history? Some worry that logging information on third-party sites could be a waste of time or even a security concern. What do you think? [More]

Living a normal life is what most people expect when they start a family. When children are born with a chronic illness like PIDD, often families find they have to create their own version of “normal.” [More]

By Carla Schick

Chronic illness knows how to take its toll on the body, mind and spirit. It thinks [More]

On May 22nd, 2001-10 years ago to the day of this post-my husband and I flew from California to Paris, planning to immerse ourselves in Parisian culture for three weeks. The second day there, I got sick with what appeared to be an acute viral infection. I spent most of those three weeks in a Parisian bed. [More]

By Stan Goldberg

Many people believe that everyone lives in the same world. At an event, we all see [More]

When a chronic disease hits, much of the attention is focused on the person with the disease. However, family and friends also are affected. For caregivers, it can feel as though they are maneuvering blindly through an obstacle course full of traps and landmines, where any wrong move can result in an explosion of emotions, leaving everyone feeling spent and helpless. [More]

By Tammie Allegro

Families come together in many different ways. Sadly, many families in the immune [More]

Guilt is one of the predominant emotions that accompany chronic illness. Certainly it waxes and wanes, but it is inescapable. In my experience, it’s the ways in which my illness impacts those around me that is the cause of much of my guilt. [More]