IG Living Blog

Dedicated to bringing comprehensive healthcare information, immune globulin information, community lifestyle and reimbursement news.

Posted on 9. February 2023

My Rare Diagnosis Journey: Comparable to a (Not So) Fun House

Do you remember navigating those fun houses with mazes of glass hallways and mirrors at the state fairs of our youth? When I think about the 12 years it took to get my rare disease diagnosis, it reminds me of those fun houses — only it was not so fun. [More]
Posted on 3. November 2022


There is no doubt about it. It’s an ongoing juggling act to be chronically ill. If we aren’t juggling our energy stores, we are juggling our med schedules. And nobody can dismiss for a moment the juggling chronically ill patients and their families must do to pay for those meds. If meds are in the rare disease category, it’s a bigger juggle. I’m beginning to think I should have gone to clown school instead of college. [More]
Posted on 29. July 2021

Asking for and Accepting Help During a Serious Illness

Support is essential to help navigate the many challenges of a serious illness. Illness can bring difficult treatments, painful side effects and patchy recovery periods. Asking for and accepting help, however, is often complicated because we value our independence. [More]
Posted on 11. March 2021

Safe Travels

I don't know about the rest of you, but I can't wait to travel again. I haven't been anywhere in more than a year now. What's worse is my husband bought us a prepaid trip in 2019 for our anniversary in 2020 that we had to postpone indefinitely. [More]
Posted on 25. February 2021

What Is Rare Disease Day?

Rare Disease Day is the official international awareness-raising campaign for rare diseases that takes place on the last day of February each year. The main objective of the campaign is to raise awareness among the general public and decision-makers about rare diseases and their impact on patients’ lives. [More]
Posted on 11. February 2021

Pouring from an Empty Cup? Here are Some Self-Care Tips for Caregivers

Taking care of someone you love is an honor, but it's also a serious undertaking. Whether you're a caregiver by calling or circumstance, the work of keeping someone else well and comfortable will take a lot out of you. It's important to find ways to recharge your batteries when you're taking on this role. [More]
Posted on 7. January 2021

Friend Check

On New Year's Day, I called one of my dearest friends. She is a smart, fun, quirky person who always sees the bright side of things. I have always enjoyed talking to her and love her dearly. But, with everything going on, we had not talked in a few months so I was eager to catch up. A few minutes into our conversation, the topic turned to COVID. [More]
Posted on 17. December 2020


A piece about how emotional trauma impacts the brain and body and what it means for New Year’s health. [More]