IG Living Blog

Dedicated to bringing comprehensive healthcare information, immune globulin information, community lifestyle and reimbursement news.

Posted on 9. February 2023

My Rare Diagnosis Journey: Comparable to a (Not So) Fun House

Do you remember navigating those fun houses with mazes of glass hallways and mirrors at the state fairs of our youth? When I think about the 12 years it took to get my rare disease diagnosis, it reminds me of those fun houses — only it was not so fun. [More]
Posted on 26. January 2023

Trauma and a Nod to Chronic Illness Found in Spare

As a teen, I idolized Princess Diana and was devastated when she died. As a mom of three young boys at the time, and having grown up without my own mom, I knew all too well the devastation her young sons were feeling. All I kept thinking was: Those poor boys. With the news of Prince Harry’s autobiography Spare being released in January, I pre-ordered a copy and cleared my reading calendar. Even so, I was completely unprepared for the emotions I experienced when I read it. [More]
Posted on 12. January 2023

Holiday SubQ: Infusing on My Schedule

I’ve often shared about my “Sunday SubQ” routine of clearing my afternoon schedule, turning on my guilty pleasure reality TV shows and administering my weekly dose of subcutaneous immune globulin (SCIG). However, I recently grappled with what to do when two Sundays in a row happened to be holidays and my infusions were due. Luckily, when it comes to SCIG, it’s easy to flex the infusing schedule by two days, either way! [More]
Posted on 15. December 2022

The Gift of No Bones Days

Five years ago, when I started blogging on the professional level, I was highly encouraged to include social media pages that corresponded with my blog. And, even though my local paper no longer supports blog content, I continue to promote my writing through social media. About a year ago, I branched my content into the world of TikTok, where I came upon an adorable geriatric pug, Noodle, and his wonderful adoptive owner, Jonathan Graziano. [More]
Posted on 3. November 2022


There is no doubt about it. It’s an ongoing juggling act to be chronically ill. If we aren’t juggling our energy stores, we are juggling our med schedules. And nobody can dismiss for a moment the juggling chronically ill patients and their families must do to pay for those meds. If meds are in the rare disease category, it’s a bigger juggle. I’m beginning to think I should have gone to clown school instead of college. [More]
Posted on 13. October 2022

Sunday SubQ

By Dawn DeBois

When I transitioned from monthly intravenous immune globulin (IVIG) treatments to we [More]
Posted on 25. August 2022

SAD Days

Immune globulin (IG) patient Dawn DeBois explains to readers how people who suffer from chronic illness have their own type of SAD. [More]
Posted on 4. August 2022

Hydrate, Hydrate, Hydrate!

My home state of Maine has not been exempted from the recent heat wave that has encompassed most of the United States. The heat is difficult for many, but I have a neuromuscular disease that is exacerbated by the heat, so I must be particularly careful to stay cool and hydrated. Each morning, I do two things without fail. First, I open all the windows at 5 a.m. to fill my rental with cool air before the outside heat necessitates closing them again and turning on the air conditioning. Second, I mix a hydration packet into my water. I can’t help but think of how similar this second routine is to my immune globulin (IG) treatment regimen. [More]